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INTRODUCING AAV WORLD!

Balancing different clinical priorities is a major challenge in the management of ANCA-associated vasculitis: keep inflammation under control, achieve and sustain remission, prevent long-term organ damage, all while navigating treatment options that in their own way may place a heavy burden on patients.1–3

We think it’s important to have a chance to learn, while also relaxing! AAV World is a brand-new educational game that sheds light on the clinical priorities in AAV in a fun and interactive way, through a mix of skills challenges, brainteasers, riddles and quizzes.

Your objective: protect AAV World from damage

Start by viewing the AAV World landscape and decide which of the four zones is your most urgent priority:

  • Vasculitis Volcano represents vasculitis activity
  • Burden Forest represents the burden that comes with the disease and treatment
  • Patient Metropolis represents the patients experience and their quality of life
  • Kidney Island represents organ damage

Complete interactive challenges, brainteasers, riddles and quizzes. Each time you win, you’ll be improving the health of AAV World.

Are you up to the challenge? Protect AAV World today!

Play Now Verwijzingen en voetnoten
aav1 Verwijzingen en voetnoten

INVESTIGATE AAV

Join the Rare Disease Investigation Team to help think what may be causing an unusual, but highly dangerous situation.

You’ll need to examine the evidence – reading case files on the impact of AAV, impact of treatment and delay to diagnosis, as well as watching highly classified CCTV footage.

Can you identify the prime suspects before the time runs out?

Play Now
investigate-aav
Introduction to AAV

Inleiding tot AAV

AAV is een zeldzame, ernstige vasculitis van de kleine bloedvaten die meerdere organen kan aantasten en een hoog overlijdensrisico heeft1

Lees verder
Disease Mechanism

Ziektemechanisme

De wisselwerking tussen de geactiveerde alternatieve complementroute, neutrofielen en C5a vormt de kern van de schade aan bloedvaten door AAV2

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AAV treatment

AAV-behandeling

Een praktijkkader voor de behandeling en het beheer van AAV-patiënten

Lees verder
Verwijzingen en voetnoten
EUVAS

European Vasculitis Society website

Lees verder
ASN

American Society of Nephrology

Lees verder
ACR

American College of Rheumatology

Lees verder
ERA

European Renal Association

Lees verder
EULAR

European Alliance of Associations for Rheumatology

Lees verder
KDIGO

Kidney Disease Improving Global Outcomes

Lees verder
KDIGO recommendations

KDIGO recommendations for the management of individuals with glomerular diseases

Lees verder
EULAR treatment recommendations

EULAR recommendations for the management of ANCA-associated vasculitis

Lees verder
EULAR recommendations pocket guide

Summary of EULAR recommendations for the management of GPA/MPA

Downloaden
Patient videos and quality of life
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Vasculitis International

Europe

www.vasculitisint.com
Selbsthilfe Vaskulitis e.V.

Germany

www.vasculitisint.com/vpag/vaskulitis-e-v
Associazione Pazienti della Sindrome di Churg Strauss

Italy

www.apacs-egpa.org
Suomen Vaskuliittiyhdistys ry

Finland

www.vaskuliittiyhdistys.fi
Selbsthilfe Vaskulitis Mainz

Germany

vaskulitis-mainz@gmx.de
Vasculitis Stichting

Netherlands

www.vasculitis.nl
Liga Portuguesa Contra as Doencas Reumaticas

Portugal

www.lpcdr.org.pt
Association Vascularites

France/Belgium

www.association-vascularites.org
Asociación Española de Vasculitis Sistémicas

Spain

www.sid-inico.usal.es
Associazione Malattie Autoimmuni

Italy

www.associazionemalattieautoimmuni.it
Associazione Nazionale Malati Reumatici ONLUS

Italy

www.anmar-italia.it
Australia and New Zealand Vasculitis Society

Australia / New Zealand

www.anzvasculitis.org
Federación Española de Enfermedades Raras

Spain

www.enfermedades-raras.org
Liga Reumatológica Española

Spain

lire.es/
Vasculitis Stowarzyszenie Chorych

Poland

vasculitis.org.pl/